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Page history last edited by UNITED PARENT SUPPORT 10 years, 5 months ago

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UNITED PARENT SUPPORT

held at

Massena Library, MASSENA, NY 13662

 

CONTACT INFORMATION;

 

Diana at (315) 705-8317

or

Debra at (518) 947-8720

 

 

 

OUR STATEMENT: TO CREATE A FRIENDLY ENVIRONMENT WHERE PARENTS AND FAMILY MEMBERS WHO HAVE CHILDREN WITH DISABIITIES CAN LISTEN, LEARN, AND SHARE THEIR EXPERIENCES WITH OTHER FAMILIES OF THE SAME.

 

OUR MISSION: TO LEAVE A POSITIVE IMPACT ON PARTICIPANTS THE BENEFITS, ADVISE, INFORMATION, AND RESOURCES THAT THEY MAY BE ABLE TO INCORPORATE AND USE FOR THIR OWN NEEDS.

 

GROUP MEETINGS: CONSISTS OF SPEAKERS, INFORMATION, DISCUSSIONS, RESOURCES, AND SHARING INFORMATION FOR ALL TYPES OF DISABILITIES.

 

COME SHARE YOUR STORY. MEETING DATE AND TIME: 3RD. TUESDAY OF EACH MONTH.(NO MEETING IN JULY AND AUGUST) FROM 6-8 PM AT THE LIBRARY IN MASSENA.

 

 

CONTACT : DEBRA AT 518-947-8720 OR DIANA AT (315) 705-8317 FOR MORE INFORMATION

 

 

 For information on the New York State Individual & Community Services (ICS)

 and Front Door Access please click here:

http://mjbndjbnajb.pbworks.com/w/page/70357685/Consolidated%20Support%20Service%3B%20Self-Directed%20Plans  

 

 

NEW TO DISABILITIES? http://nichcy.org/families-community/new-to-disability

 

http://www.wihd.org/document.doc?id=477

 

 

OUTDOOR ACCESSIBLE RECREATION IN NY STATE:

http://www.dec.ny.gov/outdoor/34035.html

 

DISABILITY RELATED EVENTS IN NY STATE

http://ddpcmonthlyupdate.us

 

TIME MANAGEMENT:

http://www.mindtools.com/pages/main/newMN_HTE.htm

 

DISASTER PLANNING GUIDE:

http://www.disastercenter.com/guide/family.htm

 

 

NORTH COUNTRY PUBLIC RADIO: for weather and school closing:

http://northcountrypublicradio.org/storm.html

 

PRODUCT SAFETY COMMISSION:

http://www.cpsc.gov/

you can also file a product complaint here

 

STOP BULLYING .GOV

http://www.stopbullying.gov/index.html

 

 

IMPORTANT INFORMATION

ON EDUCATION:

 http://mjbndjbnajb.pbworks.com/w/page/47024807/Educational%20Settings%20and%20Information

 

 

 

 

 

RESOURCES FOR SPECIFIC DISABILITIES:

 

HOW TO ACCESS SERVICES THROUGH OPWDD:

http://www.opwdd.ny.gov/servicesindex.jsp

 http://www.opwdd.ny.gov/

 

 

OFFICE OF MENTAL HEALTH:

http://www.omh.state.ny.us/omhweb/resources/publications/

 

BRAIN INJURY ASSOCIATION OF NY STATE:

http://www.projectlearnet.org/index.html

 

MEDICAID

http://www.health.state.ny.us/health_care/medicaid/

 

SECTION 504 OF THE REHIBILITATION ACT: OFFICE OF CIVIL RIGHTS; EDUCATION

http://www2.ed.gov/policy/rights/reg/ocr/edlite-34cfr104.html

http://www.p12.nysed.gov/specialed/formsnotices/ school forms

 

Civil Rights complaint form: on line complaint: (504 plans)

 http://www2.ed.gov/about/offices/list/ocr/complaintintro.html

 

AMERICANS WITH DISABILTY ACT

ENVIRONMENTAL LAWS FOR SMALL TOWN

 http://www.ada.gov/smtown.pdf

 

 

SOFTWARE FOR PEOPLE WITH DISABILITIES:

http://www.cameramouse.org/index.html

http://www.cameramouse.org/downloads.html

AMERICAN SIGN LANGUAGE: http://commtechlab.msu.edu/sites/aslweb/browser.htm

 

 

List of Disabilities and websites:

 

  • MENTAL DISORDERS LIST

http://en.wikipedia.org/wiki/List_of_mental_disorders_as_defined_by_the_DSM_and_ICD

 

  • NATION INSTITUTE OF MENTAL HEALTH LISTINGS:

http://www.nimh.nih.gov/health/publications/treatments-listing.shtml

 

ADD/ADHD:

  • INFORMATION

 

http://mjbndjbnajb.pbworks.com/f/ADHD-identifying.pdf

 

http://www.jimwrightonline.com/pdfdocs/adhdManual.PDF

 

http://add.about.com/

 

Alzheimer's Disease:

  • NATION INSTITUTE OF AGING:

http://www.nia.nih.gov/Alzheimers/AlzheimersInformation/GeneralInfo/

 

Anxiety Disorder:

  • NATIONAL INSTITUTE OF MENTAL HEALTH:

http://www.nimh.nih.gov/health/topics/anxiety-disorders/index.shtml

 

Asperger Syndrome:

  • OASIS

http://www.aspergersyndrome.org/

 

Autism: http://www.autismspeaks.org/docs/family_services_docs/sk/School_Community_Tool_Kit.pdf

 

New York State Website:

http://www.nyacts.org/ http://nyacts.org/

  • This website is designed to provide current information on New York State services and supports for individuals with autism. Autism is on the rise in New York State and around the country. It is estimated that more than 60,000 New York State residents have a diagnosis of autism or autism spectrum disorders (ASDs) and that the incidence of autism could reach 4 million Americans in the next decade.

 

 

  • WATCH VIDEOS

http://www.childnett.tv/videos/lectures/early_signs_autism_insight_study_high_risk_infants

 

  • MSNBC

 http://www.msnbc.msn.com/id/6844737/ns/health-mental_health/FIRST

 

  • CENTER FOR AUTISM AND RELATED DISORDERS (C.A.R.D.) VARIOUS PRESENTATIONS ON AUTISM

http://centerforautism.com/

 

  • ASD IAN REARCH

https://www.ianresearch.org/login

 

  • AUTISM SPEAKS

http://www.autismspeaks.org/

 

  • Positively Autism

http://www.positivelyautism.com/free/

 

NEW YORK STATE WEBSITE ON AUTISM: http://www.opwdd.ny.gov/autism/index.jsp

 

Bipolar Disorder:

  • NATIONAL INSTITUTE OF MENTAL HEALTH:

http://www.nimh.nih.gov/health/topics/bipolar-disorder/index.shtml

 

 

Cerebral Palsy:

  • LIST OF ORGANIZATIONS:

(FROM THE NATIONAL INSTITUE OF NEUROLOGICAL DISORDERS AND STROKE)

http://www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm

 

  • nichcy.org

http://www.nichcy.org/Disabilities/Specific/Pages/CerebralPalsy.aspx

  • UNITED CEREBRAL PALSY OF THE NORTH COUNTRY

http://www.cpnorthcountry.org/

 

Dislexia:

  • INTERNATIONAL DYSLEXIA ASSOCIATION

http://www.interdys.org/index.htm

 

Depression:

  • PSYCHOLOGY INFORMATION ON LINE

http://www.psychologyinfo.com/depression/depression_types.html

 

Down's syndrome:

  • NATIONAL DOWN'S SYNDROME SOCIETY

http://www.ndss.org/

http://kidshealth.org/parent/medical/genetic/down_syndrome.html  

 

Dyscalculia:

  • LEARNING DISABILTIES ASSOCIATION.ORG

http://www.ldanatl.org/aboutld/parents/ld_basics/dyscalculia.asp

 

 

  • NATIONAL CENTER FOR LEARNING DISABILITIES

http://www.ncld.org/

 

Obsessive Compulsive Disorder (OCD):

  • INTERNATIONAL OCD FOUNDATION

http://www.ocfoundation.org/

 

Stress:

  • HELPGUIDE.ORG

http://helpguide.org/mental/stress_signs.htm

 

Tramatic Brain Injury:

 

Visual Impairment

 

 Blindness:

  • NATION FEDERATION OF THE BLIND

http://www.nfb.org/nfb/Info_About_Vision_Loss_For.asp?SnID=778735581

 

  • NATIONAL LIBRARY OF CONGRESS

Talking books; From The National Library Service for the Blind and Physically Handicapped (NLS)

http://www.loc.gov/nls/

 

Color Blindness:

  • EYE CARE SOURCE

http://www.eyecaresource.com/conditions/color-blindness/

 

 Hearing Impairment

 

Hearing Loss:

  • AMERICAN SPEECH/LANGUAGE/HEARNIG ASSOCIATION

 

http://www.asha.org/public/hearing/disorders/types.htm

http://www.nichcy.org/Disabilities/Specific/Pages/DeafnessandHearingLoss.aspx

 

 

Meniere's Disease:

  • MENIERE" DISEASE INFORMATION CENTER

http://www.menieresinfo.com/start.html

 

Speech: http://www.oms.nysed.gov/medicaid/services/speech_therapy/home.html

 

 

 

 Disclaimer 1: This site is parent-developed and represents a best-effort to put together resources, but is not professional recommendation. Providers and services are listed purely for information,

  • and listing does not constitute recommendation, endorsement or warranty.
  • Disclaimer 2: This site is here to provide background info and ease of access to info, but in no way can be construed as a substitute for input and supervision by a trained and competent professional.
  • Disclaimer 3: Because of the almost overwhelming amount of information on the web, no single website will probably be comprehensive. We also apologize in advance for this, and for possible changed or inactive web
  • addresses in the links, which are in the hands of the listed service or product. If you encounter a dead or inactive link please let us know http://mjbndjbnajb.pbworks.com/contact.php and we will try to bring the information up to date.
  • This site is for information purposes only and does not have social networking capalilities.
  • SITEMAP: http://mjbndjbnajb.pbworks.com/browse/#view=ViewAllFiles

 

We hope that this site, as an ongoing work-in-progress, will help in locating the info to make a

positive experience and change for children, their families and all who are looking for information on these topics.

 

 

Never doubt that a small group of thoughtful,

committed citizens can change the world;

indeed it's the only thing that ever has.

—

Margaret Mead

 

 

 

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